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IDAHO FALLS — Friends and household are mourning the loss of a neighborhood girl who succumbed to a uncommon illness final week simply weeks earlier than her twelfth birthday.
Zion Waynewood of Idaho Falls died Dec. 1 of thrombotic thrombocytopenic purpura, a life-threatening blood dysfunction through which clots kind all through the physique and block blood move to organs, in line with the National Heart, Lung and Blood Institute.
Zion’s 20-year-old sister, Addy Faith, instructed EastIdahoInformation.com that Zion was recognized with the illness earlier this yr after experiencing a fever, weight reduction, a bloody nostril and a low white blood cell rely.
“(Doctors) couldn’t stop her nosebleed (during one visit) and that’s when they realized it could be a blood disorder. They ran some tests and found it to be TTP,” says Faith. “She had to have chemotherapy for it.”
Faith says that just a few months earlier, Zion had some behavioral points that medical doctors say in hindsight had been probably attributable to TTP. Otherwise Zion was completely wholesome and the analysis got here out of the blue.
Zion was out and in of hospitals for months. Doctors needed to cauterize her nostril to forestall bleeding. She ended up with a feeding tube. According to her GoFundMe web page, she has had quite a few blood transfusions and was on a number of medicines and steroids.
“She then developed lupus and stage 3 kidney disease,” writes Zion’s instructor Amanda Byrd, who began GoFundMe. “During Thanksgiving week, she was admitted to St. Luke’s Children’s Hospital in Boise. On December 1, she died at Eastern Idaho Regional Medical Center with her entire family around her.”
Zion, left, together with her sister Addy (heart) and mom Miya. | Addi Faith
Byrd describes Zion as a “silly, funny” girl who was “easygoing” and really “sweet” and “considerate of others.” She was a scholar at Fox Hollow Elementary however attended faculty on-line when her condition worsened. Byrd says Zion confirmed up day-after-day with a smile on her face and did her finest despite the fact that she wasn’t feeling nicely.
After coping with her personal well being points, Byrd felt compassion for Zion and wished to assist. That prompted her to begin a GoFundMe for her household’s medical bills. It raised $3,770 in the final 4 days.
“She was such a great girl. I’ve been with her for so long and watched her grow (because I also tutored Addy for several years),” says Byrd. “I feel really close because I’ve been part of her family for eight years.”
Faith started recording music just a few years in the past, and Zion at all times made positive she and her siblings “feel seen and happy about what they do.” Zion beloved the outside, singing, dancing, going outdoors, drawing, portray, and enjoying with mates, Faith says. She beloved to idiot round and her household meant extra to her than anything.
“All you could think of that’s joyful and bright was[that was Zion],” Faith explains.
Zion would have been 12 on December 29, and Faith says it is going to be exhausting to place up the Christmas tree this yr with out her.
But it is Zion’s smile and persona that Faith will miss the most.
“The conversations we used to have, we had our time together and she was smiling and laughing,” she says. “I will definitely miss her personality the most, and anything colorful and bright will just remind me of her.”
Faith has written a track about Zion referred to as “Enjoy the Show” which she is going to fortunately sing at her funeral.
Zion’s funeral can be on Saturday, December 10 at 11 am. It can be held at the Church of Christ at 2650 Plommon Street.
Read her obituary right here.
Zion, proper, together with her mom, heart, and cousin. | courtesy picture
Our attorneys inform us to incorporate this disclaimer in fundraiser tales: EastIdahoInformation.com doesn’t assure that funds deposited into the account can be used for the profit of these named as beneficiaries.